Update from Linda
I can give a little update as I am sure Airasa will appreciate me writing some things too.
I was in with Graham for 1 1/2 hours yesterday. I fed him his dinner and he seemed to be taking it better. He has been pretty exhausted as he has adjusted to his helpless situation and even chewing and so forth can make him breathless. But I felt he did better last night.
His mind is as active as ever and he has been working with his team to make himself as comfortable as he can under the circumstances of his situation. He was telling me that the night nurse guy and he came up with a plan to make his sleeping better. He needs this Bi-PAP thing on to help him breathe deeply into his lungs when he is lying down and it is like having your head out the car window driving along at 70 miles per hour so not exactly a fun implement of torture! They agreed he could have 2 hours on and then 2 hours off and that seemed to comfort him and he looked better today for it.
I think the stress of thinking they were going to send him home as soon as they could was bothering him as well. With such an active mind as he has, and time to just sit and think and not be able to entertain himself this can add to his worries. We reassured him that they would not be sending him anywhere except to Pinderfields. There he will have a very busy routine of physiotherapy and so forth to keep him occupied and to help him get better.
Ian spent a bit of time looking things up on the internet and there are so many reassuring stories there about people who have recovered that we are feeling much more optimistic. I can see that his hands are less swollen than they were so that is also a good sign. When his spinal cord is less swollen the bruising can heal up and we all believe he has a good chance of a rewiring job from his brain to his body. He has taken my 'inspirational' talks very well and is moving his body in his mind when he thinks to do it.
I know this is a shock to everyone but we are all starting to cope with it better and I am sure all the loving thoughts flying to him will help as well. I am sure such thoughts are helping all of us.
I have printed off the space story posted to read to him later today. Thanks for anything you send. It helps to have his mind grasping other things to think about.
That's it for now.
Space is the Place!
Linda
I was in with Graham for 1 1/2 hours yesterday. I fed him his dinner and he seemed to be taking it better. He has been pretty exhausted as he has adjusted to his helpless situation and even chewing and so forth can make him breathless. But I felt he did better last night.
His mind is as active as ever and he has been working with his team to make himself as comfortable as he can under the circumstances of his situation. He was telling me that the night nurse guy and he came up with a plan to make his sleeping better. He needs this Bi-PAP thing on to help him breathe deeply into his lungs when he is lying down and it is like having your head out the car window driving along at 70 miles per hour so not exactly a fun implement of torture! They agreed he could have 2 hours on and then 2 hours off and that seemed to comfort him and he looked better today for it.
I think the stress of thinking they were going to send him home as soon as they could was bothering him as well. With such an active mind as he has, and time to just sit and think and not be able to entertain himself this can add to his worries. We reassured him that they would not be sending him anywhere except to Pinderfields. There he will have a very busy routine of physiotherapy and so forth to keep him occupied and to help him get better.
Ian spent a bit of time looking things up on the internet and there are so many reassuring stories there about people who have recovered that we are feeling much more optimistic. I can see that his hands are less swollen than they were so that is also a good sign. When his spinal cord is less swollen the bruising can heal up and we all believe he has a good chance of a rewiring job from his brain to his body. He has taken my 'inspirational' talks very well and is moving his body in his mind when he thinks to do it.
I know this is a shock to everyone but we are all starting to cope with it better and I am sure all the loving thoughts flying to him will help as well. I am sure such thoughts are helping all of us.
I have printed off the space story posted to read to him later today. Thanks for anything you send. It helps to have his mind grasping other things to think about.
That's it for now.
Space is the Place!
Linda
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