Linda's update on Graham- Jan 24, 2005
Linda here -- just thought I would tell you my impressions, having not seen Graham for just over a week, as I was on a pre-planned holiday in Tunisia with Airasa's sister, Naomi. I went in yesterday afternoon and will probably visit him every other day until he goes to Pinderfields.
Graham is looking better in the face -- he has normal colour for one thing -- but also it is not swollen as I believe it was before. His neck seems normal size too. He has obviously lost some body muscle/fat as his chest is not as puffy -- perhaps part of it is swelling reducing as well. His hands are pretty normal in look and feel now, no longer swollen. I massaged his hands, arms, back, neck and head (where I could reach) and that seems to make him feel better. I did a little massaging of his legs too and was greatly pleased to see both his legs twitch! Though we are told this is a 'different' system in his body, and he can't feel the twitches or control them in any way, I think it is very encouraging indeed. I believe his brain will be able to rewire the legs if there are twitches, so I see this as a very positive step forward.
Of course his mood ebbs and flows, being stuck in a bed helpless is not something any of us would be able to cope with very well I am sure. He is doing his best and all the messages that are sent to him are read and relished. Airasa has a book of them now as all of them cannot be left on display!! I believe every good wish and good vibe sent his way actually physically reaches out and touches him and gives him one more little step on the way to recovery, so whatever you are doing to think of him getting better, please don't stop!!
WE all think Pinderfields will help a lot and just need the bed to become available. They will keep him busy with physiotherapy and also he will have other people to talk to and that will help him as well. Success stories of any sort help others I believe to keep up spirits and hope. When hope dies then it is harder to get better.
Airasa and Ian are giving him such wonderful care, too. Airasa has not missed visiting her dad at least once a day and Ian has only missed when he has been away on some work expedition. His support of Airasa is unflagging and I know together they will get through this. Resolute Cheerfulness and realizing there just is no choice in the matter, as it is what it is are the mainstays of their underpinnings. Plus all the warm wonderful wishes you all continue to send.
'Keep them cards and letters coming, folks!'
Love and Peace,
Linda
Graham is looking better in the face -- he has normal colour for one thing -- but also it is not swollen as I believe it was before. His neck seems normal size too. He has obviously lost some body muscle/fat as his chest is not as puffy -- perhaps part of it is swelling reducing as well. His hands are pretty normal in look and feel now, no longer swollen. I massaged his hands, arms, back, neck and head (where I could reach) and that seems to make him feel better. I did a little massaging of his legs too and was greatly pleased to see both his legs twitch! Though we are told this is a 'different' system in his body, and he can't feel the twitches or control them in any way, I think it is very encouraging indeed. I believe his brain will be able to rewire the legs if there are twitches, so I see this as a very positive step forward.
Of course his mood ebbs and flows, being stuck in a bed helpless is not something any of us would be able to cope with very well I am sure. He is doing his best and all the messages that are sent to him are read and relished. Airasa has a book of them now as all of them cannot be left on display!! I believe every good wish and good vibe sent his way actually physically reaches out and touches him and gives him one more little step on the way to recovery, so whatever you are doing to think of him getting better, please don't stop!!
WE all think Pinderfields will help a lot and just need the bed to become available. They will keep him busy with physiotherapy and also he will have other people to talk to and that will help him as well. Success stories of any sort help others I believe to keep up spirits and hope. When hope dies then it is harder to get better.
Airasa and Ian are giving him such wonderful care, too. Airasa has not missed visiting her dad at least once a day and Ian has only missed when he has been away on some work expedition. His support of Airasa is unflagging and I know together they will get through this. Resolute Cheerfulness and realizing there just is no choice in the matter, as it is what it is are the mainstays of their underpinnings. Plus all the warm wonderful wishes you all continue to send.
'Keep them cards and letters coming, folks!'
Love and Peace,
Linda
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