Graham soon to move to his apartment!
Dear All,
Here is a progress letter from England.
The apartment for Graham is going to be ready in another day or two. Craig has varnished the table and the desk so they are ready. The hoist man is bringing the proper hoist (I didn't know he had not given us that one in the first place...) today. The bed, commode chair and bathchair are being delivered today.
Aura, the live-in caregiver, has been put on the tenancy agreement so is all set to live there now. She and the day-time caregiver have been to RISB for training a couple of times each and that seems to be going really well.
The list of Graham's medications are being given to Sansum who will deliver to his apartment.
Plans to move Graham are firmed up for the 17th. RISB will move him (I believe in his wheelchair) and John and his son will move the mattress and all the other personal stuff.
I hear from the grapevine that Graham is continuing to feed himself when he can, of course with help. This is a good step in the right direction. I have also heard that a way for him to get a drink of water has been devised. Plus, I believe he has been using a voice activated phone at RISB, like the one he has ready for him at home, so that is also a big step forward.
Today (Wednesday) he is having the ITB trial -- this is an injection of baclofen into his spine to see if they can aid his health by implanting a baclofen pump that would deliver the drug directly to his spine and obviate the need for the baclofen tablets, which give him some side effects that should go away if this works. That would be great! So fingers crossed about that.
I spoke with his Social Worker for the In Home Support Services and she thinks there might be a Medi-Cal program that would give him more hours in a day -- and THAT, my friends, would really make the big difference in his care. As you know from my last letter, he had only been granted 7 hours per day of help and that meant he would have to be alone some of the time -- but we were told he could not be left alone. So this new possible program would be a huge help. Everyone please cross your fingers for this one!
For those of you in the area, I know that the first 10 days for Graham will be nerve wracking -- who would not be a bit overwhelmed by the idea? I know I certainly would! So if you are planning to see him, that would be a good time -- better for him to say thanks, but not today, rather than have no one coming to see him. My guess is that afternoons would be best until his morning routine is sorted out. But I am here in England and you are there in California, so I am only guessing.
We will be arriving late the 26th and will go to see him on the 27th probably in the late morning.
It will be so good to see him there in his place!!
OK, not too long but lots of positive news!
Love and peace,
Linda
Here is a progress letter from England.
The apartment for Graham is going to be ready in another day or two. Craig has varnished the table and the desk so they are ready. The hoist man is bringing the proper hoist (I didn't know he had not given us that one in the first place...) today. The bed, commode chair and bathchair are being delivered today.
Aura, the live-in caregiver, has been put on the tenancy agreement so is all set to live there now. She and the day-time caregiver have been to RISB for training a couple of times each and that seems to be going really well.
The list of Graham's medications are being given to Sansum who will deliver to his apartment.
Plans to move Graham are firmed up for the 17th. RISB will move him (I believe in his wheelchair) and John and his son will move the mattress and all the other personal stuff.
I hear from the grapevine that Graham is continuing to feed himself when he can, of course with help. This is a good step in the right direction. I have also heard that a way for him to get a drink of water has been devised. Plus, I believe he has been using a voice activated phone at RISB, like the one he has ready for him at home, so that is also a big step forward.
Today (Wednesday) he is having the ITB trial -- this is an injection of baclofen into his spine to see if they can aid his health by implanting a baclofen pump that would deliver the drug directly to his spine and obviate the need for the baclofen tablets, which give him some side effects that should go away if this works. That would be great! So fingers crossed about that.
I spoke with his Social Worker for the In Home Support Services and she thinks there might be a Medi-Cal program that would give him more hours in a day -- and THAT, my friends, would really make the big difference in his care. As you know from my last letter, he had only been granted 7 hours per day of help and that meant he would have to be alone some of the time -- but we were told he could not be left alone. So this new possible program would be a huge help. Everyone please cross your fingers for this one!
For those of you in the area, I know that the first 10 days for Graham will be nerve wracking -- who would not be a bit overwhelmed by the idea? I know I certainly would! So if you are planning to see him, that would be a good time -- better for him to say thanks, but not today, rather than have no one coming to see him. My guess is that afternoons would be best until his morning routine is sorted out. But I am here in England and you are there in California, so I am only guessing.
We will be arriving late the 26th and will go to see him on the 27th probably in the late morning.
It will be so good to see him there in his place!!
OK, not too long but lots of positive news!
Love and peace,
Linda
posted by Cosmic Sunshine at 9:05 AM
0 Comments:
Post a Comment
<< Home